As a student in my Master’s of Social Work program at the University of Missouri-Columbia, I enrolled in a Death, Grief, and Loss class as a clinical concentration elective course in the Summer of 2021. This is where I first encountered Zach Sobiech’s story. As an assignment, we were asked to watch two documentary films sharing Zach’s story titled Meet Zach Sobiech | My Last Days and Zach Sobiech, One Year Later | My Last Days about the life and death of Zach Sobeich (SoulPancake, 2013, 2014). We were then to write a reflection essay on our class discussion board to share with our peers. Although initially an assignment, this blog post serves as a testament to the transformative power of storytelling in illuminating the complexities of the human experience. I did not expect this assignment to have such an impact on me, deepening my understanding of the human experience.
The documentaries chronicling Zach’s journey resonated deeply with me, evoking many emotions with each viewing. Through the lens of a social work student, I found myself drawn to the nuanced portrayal of grief, resilience, and the enduring legacy of the human spirit captured in these films.
In this blog post, I invite you to join me on a reflective journey through Zach Sobiech’s story, a narrative that encapsulates the essence of love, resilience, and the enduring legacy of the human spirit. Throughout this post, we will explore Zach’s story through various lenses, touching upon themes of emotional maturity, spiritual healing, and the enduring bonds of love that transcend even death. As we navigate through the layers of Zach’s narrative, we will delve into the profound impact of his music, the resilience of his family, and the transformative power of his enduring legacy.
I hope you enjoy this journey of reflection, gratitude, and, ultimately, celebration of a life lived with profound purpose and love. Zach’s story has left an indelible mark on my heart. You, too, will feel inspired to watch the documentaries and allow Zach’s story to impact your heart.
Introduction
I want to introduce you to the inspiring life and legacy of Zach Sobiech. Diagnosed with osteosarcoma, Zach Sobiech was a teenager who, despite his terminal illness, understood the preciousness of life. He believed in living in the present and emphasized that life’s true essence lies in experiences and relationships.
Zach’s Story: The Inner Circle
I saw the film producer’s perspective in sharing Zach’s story as a slow zoom-out from a portrait to a wide-angle view. In the film, the producer’s perspective on sharing Zach’s story is akin to starting with a detailed ‘portrait’—a close-up examination that delves into Zach’s personal experiences, emotions, and struggles. It’s like looking at a finely crafted painting, where every brushstroke tells a story. However, as the narrative unfolds, the perspective gradually shifts, offering a ‘wide-angle view’ that pulls back to reveal the bigger picture surrounding Zach’s life. This broader perspective allows us to understand how Zach’s experiences are not just shaped by his individual circumstances, but also by larger societal norms, cultural values, economic conditions, and institutional systems. It’s like stepping back from the painting to see the entire canvas and the environment in which it exists. I then realized that this perspective mapped to the social-ecological model from the inner circle outward.
The Social Ecological Model (source: Centers for Disease Control and Prevention)
Social workers use the social-ecological model as a comprehensive framework to understand the nature of human behavior and well-being within their social environments.
We first learned about Zach’s story from his point of view. As the film continued, we learned more and more about Zach and his story from an ever-widening circle of people. We heard from his parents, siblings, close friends, and girlfriend in the first video. In the second video, we heard from his family and friends as the story continued. We saw Zach and his legacy’s impact on his local community and, eventually, the broader society.
Legacy through Art & Expression
Zach’s songwriting is the thread sewn through his legacy quilt. Zach used expressive arts to cope with the pending loss of his life. Through a collaboration with his friend Sammy Brown, Zach’s creative expression in lyrics and music resulted in an iconic song named “Clouds” (Rominski, 2012). Zach’s songs shared his love and life lessons with the people he cared about and the world around him.
Emotional Maturity & Family Bonds
Something so captivating about this film is the juxtaposition between Zach’s biological and developmental age and what the viewer senses as Zach’s developmental stage. It’s remarkable to consider how emotionally mature Zach is, given his age, and quite humbling to consider how a terminal diagnosis pushes you quickly through life’s stages. Zach channeled his sensitivity, wisdom, and curiosity into a message that resonates far beyond himself. I was also very touched by Zach’s strong attachment to his family and his family’s attachment to each other. As we have learned, when individuals feel safe and secure, they feel supported to explore and thrive in the world around them. Zach and his family felt safe expressing emotions and leaning on each other for support. Secure attachments with loved ones were a lifeline to Zach as he grieved the end of his life.
Spiritual Experiences & Healing
Zach’s family experienced a difficult loss when he died. His family and loved ones leaned on each other. Relationship bonds amongst the remaining living family members and friends have grown tighter; for example, Zach’s girlfriend Amy Adamle and his friend Sammy Brown describe they were as close as sisters. Zach’s parents held hands and arms around each other, leading me to believe that they turned toward each other and supported each other through this painful experience. Grace, the sister Zach was closest to, was depicted in the second film with her other brother. The connection these two siblings shared during those vulnerable moments in the interview led me to believe they have become closer since losing Zach.
Continuing Bonds & Growth
The second film made me reflect on Zach’s loved ones’ unique spiritual experiences. For example, Zach’s Mom was featured in the video holding rosary beads, which gave me the sense that her spirituality supports her in grief. We saw Zach’s Mom and Dad together in a church, which led me to believe that prayer plays a role in their healing. Many of the younger adolescents and adults in Zach’s family and friend group spoke of feeling like Zach revealed himself in various ways during their ordinary lives. For example, his friends later saw the clouds in the shape of the letter Z in a group photo. Seeing and hearing how others experience spirituality in the face of loss is interesting. Interestingly, the younger generation (i.e., adolescents and emerging adults) experienced spirituality more like a feeling in ordinary life. At the same time, religious customs supported Zach’s parent’s healing.
Conclusion
Zach’s Gift of Love and Hope
Zach gave the people in his life a beautiful gift by living all his moments with them full of love. Zach had a positive outlook, it seems, on nearly all things and approached death with this same perspective. A beautiful example of this is how Zach and Amy dreamed together about their shared future despite his diagnosis. They did not allow Zach’s cancer diagnosis to take away their hope and dreams. Later in the film, we learn that Zach and Amy talked about Amy finding love after his death. In an unselfish expression of love, Zach allowed Amy to move on and find love with another man while still honoring their love.
Diverse Experiences of Grief
Every person who loved and cared for Zach experienced the losses surrounding his death differently. Some of his loved ones are more public in their sharing and experience of grieving, while others are more private. They all had their ways of processing the grief before and after his death. Each had to re-learn how to interact in the world without Zach.
Legacy
All of Zach’s loved ones had a unique continuing bond with Zach after his death. Despite the differences in their experiences of grief and loss, Zach taught all his loved ones about hope and how it can positively impact life. Zach seems to have tattooed a message about the meaning of life on each of their hearts. The grace and love Zach approached death with was a gift to those Zach loved. His loved ones are growing in healing and resilience as they spend the rest of their lifetimes crafting the narrative about what Zach’s role in their life meant to them.
On a Personal Note
As I conclude this reflection on Zach Sobiech’s life and legacy, I invite you to engage with his story more deeply. I encourage watching the documentaries and learning more about Zach Sobiech’s story.
Disney made Zach’s story into a feature film, Clouds | Official Trailer.
Feel free to share your thoughts, experiences, or reflections on the themes discussed in this post. How has Zach’s story impacted you? How can you apply these lessons to your own life and relationships?
References
Clouds | Official Trailer. (2020). Disney. https://youtu.be/_KwQFSMWDKU?si=PZol3DQoHjviY2x5
MIB Agents. (2023). About Osteosarcoma. https://www.mibagents.org/patients-caregivers/about-osteosarcoma?gad_source=1&gclid=CjwKCAiAibeuBhAAEiwAiXBoJKqd4t0cEq_4VbfMST6qsJQ4gfwKmr_NYCQKrNl9_5SKF5N_lkt5cxoCRL0QAvD_BwE
Rominski, M. (2012, November 14). Clouds by Zach Sobiech. https://vimeo.com/53561921
SoulPancake. (2013, May 3). Meet Zach Sobiech | My Last Days. YouTube. https://www.youtube.com/watch?v=9NjKgV65fpo
SoulPancake. (2014, May 5). Zach Sobeich, One Year Later | My Last Days. YouTube. https://youtu.be/5iTImZGOtc4
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